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"Unique contribution of one patient advocacy organization in advancing cerebral cavernous malformation awareness and research:" vpjournal.net/article/view/4… #CCM #Cavernoma #CavernousMalformation #CavernousAngioma #SpinalCavernousAngioma #AccelerateTheCure #RareDiseaseAwarenes
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Did you know less than 5% of Rare Diseases have approved therapies? IndoUSrare is building collaborative bridges between the eastern and western hemispheres to accelerate orphan therapies. indousrare.org #indousrare #raredisease #rarediseaseawarenes #health
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Tanzania human-genome project.. so so excited about this😅!!!!! #RareDiseaseDay @humangeneticstz #RareDiseaseAwarenes in Tanzania #Feb28th
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How great does Claire and her twin nieces look in our #WhatsUpDoc T-shirts? Share your #JeansforGenes T-shirt pics and help to raise awareness of #geneticdisorders #raredisease #ebwarrior #healeb #causethewave #love #doen #arara #epidermolise #comesayhi #rarediseaseawarenes
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It is not uncommon for those with Kabuki Syndrome to sleep with their eyes partially open. Follow our 30 Day Kabuki Syndrome Awareness Campaign. Like & Share! #kabukisyndrome #allthingskabuki #awareness #advocate #themoreyouknow #joinourcampaign #raredisease #rarediseaseawarenes
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